Welcome to My Full-Time RV Living LifeStyle Blog!

I suppose I should mention that this is an RV blog. The picture of me standing beside a motorhome in the banner probably tipped you off to that fact already, but you know how it is with blogs, any body can put anything in the header.

Anyways, I was born, raised, and live in Maine, I have 12 cats, and some people would call me homeless. Nope, I have a home, I just don't have what people call a standard house. My house has wheels and her name is Rosebud. My backyard stretches on for thousands and thousands of miles all the way from the Atlantic Ocean to the Pacific Ocean.

Once upon a time I had a "regular home" but a flood came and took it away. Me and my cats spent the next 3 years living under a 8x6 tarp and survived through 3 blizzards and Maine's coldest winter on record when the temps hit -48F. After that me and the cats moved in a Volvo. As hard as it is to live in a tent with 12 cats, it's even harder to live in a Volvo with 12 cats, and a motorhome named No Hurry was the answer. No Hurry: my home, my office, my RV.

I plan to use this blog to share my thoughts, ideas, adventures, and advice on being self-employed, living and working a full-time RV LifeStyle with an army of cats, while boondocking in the wonderful (and sometimes sub-zero) state of Maine.

I hope to write a post a day featuring random thoughts as they pop into my head, and hopefully 2 or 3 posts per week will focus on something helpful to those seeking to live in an RV full time. If you've any thoughts, ideas, or suggestions on what sort of posts you'd like to see me write, please comment and let me know.

I hope you all have as much fun reading this blog as I know I'll have writing it.


Saturday, December 15, 2012

One of the reasons why an adult with Autism needs "adult supervision"

One of the reasons why an adult with Autism needs "adult supervision" is their brain does not tell them they are in pain. Was just commenting on the FaceBook status of a friend who got hurt, and it occurred to me that a lot of people don't understand how it is I had 4 root channels awake and without pain meds, or how I also sat through reconstructive surgery on my face, after having my lip ripped off by a rooster, or again when I had surgery for CTS, or how I can go weeks with a broken bone and not know it is broken. Over the years, people who really, really, REALLY know me well, have come to know that if I say the words "I hurt" than, I'm in a state of needing to have been taken to the hospital, several weeks ago, as doctors put it "her propensity for pain is astounding, look at what I'm doing, she's not even flinching and I haven't given her anything for the pain".

When I went to the dentist, because my teeth hurt, the girl at the desk told him "she can wait, she doesn't seem to be in any pain" an hour later he was giving her hell for not rushing me to the hospital, because my jaw was so bad I needed surgery to remove my teeth and have a plate put in. (yes, I have false teeth on one side of my jaw) .

I am thinking of all the times I have required major medical repairs, because I didn't know I was hurt and it took those around me several weeks to realize, I don't respond emotionally or physically to pain.  I fell down and hurt my arm last year - did the ice thing: for 3 days, than Ben comes over and asks me "what's wrong with your arm?", and I tell him I fell down and it hurts, can't move it, but I'm okay; he looks at it than next thing I know he's in a panic driving me to the hospital. Yep, it was broken and I didn't know it. The doctors where baffled at why the hell did I wait 3 days to go to the hospital, than they look at my medical records "oh, Autism, that's why", unfortunately, one of the stranger symptoms of Autism is, a numbing of the senses, the whole being allergic to everything from sunlight to wool to food, means my body is so used to hurting, that when I'm hurt really bad, it doesn't send a message to my brain telling me I need help, instead my brain goes "ho hum, more pain, so what?" and the chemicals that are suppose to be triggered to tell me "hey, I'm hurt really bad here, I need to go to the hospital" don't kick in, so I can go for days (or weeks as was the case when I broke my hip 2 years ago) before someone around me notices somethings wrong, and asks "hey, why are you limping", and I'll say "oh, got beaten up a few weeks back, hurt my leg, couldn't walk for the first few weeks"..."why didn't you go to the hospital"..."it doesn't hurt that bad"..."but, it's a broken bone!" ... "really?"

It's one of the reasons I need "adult supervision  in spite of being in my 40's, because my brain doesn't pick up on the fact that I've been injured.

I suppose more frightening than "not knowing" I'm injured is when I have a stroke and continue on my day like normal, but wander around with out a clue where I am or who any one is. I've had 3 strokes in the past 3 years, that's why I keep forgetting things when playing D&D, I mean, I know every edition of this game inside out and I'll be mid game and suddenly have no a clue what to do. I had a stroke again, a few weeks ago, that week I missed the game session, when I told my friend I wasn't feeling good, I had spent most of the day wandering around the campus without a clue where I was or what I was doing there, missed my classes that day because I couldn't find the buildings, I only randomly meet up with my friend and for some reason remembered I was suppose to play a game that night, otherwise I wouldn't have known to tell her I was going home.

It's upsetting actually, to know you are in a place where you should know where you are, but just not recognize anything. I've been without "adult supervision" 6 years now, and for the most part I do good, but it's when I get hurt/injured/sick that I run into trouble, because my brain just lacks whatever it is it needs that would normally tell me to go to a hospital.  I've got a permanent injury now from waiting so long before realizing my leg was broken. This is the reality of life with Autism.

Ever wonder what it was like to live with Autism? 
I have Autism. For more of my life I rarely spoke and was considered "too crazy" to ever live a normal life. I communicated via writing instead of vocally. I did not attend school. Psychologists said I would never drive a car, never get a job, never go to college, never function as a meaningful member of society, never be able to take care of myself or live on my own. They said there was no hope for me, I would need full-time care my whole life. 
My progression was long and slow and very hard. Things other people found easy to do (getting dressed, brushing teeth/hair, walking across the street, etc,) I found extremely confusing and hard to learn. I was prone to wandering off and getting lost (I still am). Driver's ed takes most people a few weeks to learn - it took me 5 years. 
I determined to prove the doctors wrong, but it was far harder to do, than most people would imagine. I got my first job working at Macy's at age 30 (a very difficult job as I had to deal one on one with customers and I still at that point was not talking in a manner that could be understood by others). I got my GED at age 34. I got my driver's license at age 35. I started college at age 36. By age 37 I had become a Phi Theta Kappa Honor Student and I was finally able to speak to others in full spoken verbal conversation for the first time in my life. 
Now you can find out what it's like Being an Adult with Autism


Good morning Starshine! Liked this post? Looking to connect with me online? I love social networks and am on most of them. You can find me on: BloggerEtsyFaceBookGoogle+KeenMySpaceNaNoWriMoProBoardsScript FrenzySpoonflowerSquidooTwitterULC Ministers NetworkWordpress, and Zazzle Feel free to give me a shout any  time. Many blessings to you, may all your silver clouds be lined with rhinestones and sparkle of golden sunshine. Have yourself a great and wonderful glorious day!

~Rev. Wendy C. Allen aka Empress EelKat of Laughing Gnome Hollow


This post was written by Wendy C Allen aka EelKat, is copyrighted by The Twighlight Manor Press and was posted on Houseless Living @ http://houselessliving.blogspot.com and reposted at EK's Star Log @ http://eelkat.wordpress.com and parts of it may also be seen on http://www.squidoo.com/EelKat and http://laughinggnomehollow.proboards.com  If you are reading this from a different location than those listed above, please contact me Wendy C. Allen aka EelKat @ http://laughinggnomehollow.proboards.com/index.cgi?action=viewprofile and let me know where it is you found this post. Plagiarism is illegal and I DO actively pursue offenders. Unless copying a Blog Meme, you do not have permission to copy anything appearing on this blog, including words, art, or photos. This will be your only warning. Thank you and have a glorious day! ~ EelKat


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